I have some ideas floating in my mind of what I want to post about next. But those are going to have to wait. Between me being busy, having a Fibromyalgia flare-up and a sick daughter I don’t see myself getting to it anytime soon.
Fibromyalgia is a condition that causes musculoskeletal pain1. When I get a Fibromyalgia flare-up, or fibro flare-up, my body can’t function properly. My pain in my muscles and joints intensify and I’m exhausted. Also I experience ‘brain fog’, I can’t focus and I can’t remember things and I mix up words constantly. So that has been rough dealing with it since Wednesday. And it got really bad this weekend because I kept pushing through, acting like I was fine. By Saturday my body was done. But I couldn’t take a proper break because my poor daughter is sick.
So my daughter has a history of joint and limb pain. I took her to the doctor earlier this year, tests were ran and everything was fine. I was told the pain was probably growing pains and to call back if anymore issues occur. Well of course this past week she’s been having joint and limb pain again and then on Friday evening she had a low-grade fever. She’s been a mess all weekend. So I called the pediatrician’s office explained the situation to the nurse and she says to bring her in. Of course my daughter’s doctor doesn’t work on Mondays so an appointment with another doctor is made. This afternoon we are going in to get her checked out. I’m hoping it’s nothing serious.
Also this is going to sound bad. But she can’t be seriously ill because we are going on a trip half-way across the country to see my sick grandfather soon. We have made arrangements for this trip and my mom and youngest sister are coming along. I’m putting off surgery for my damn gallbladder so we can see my grandpa who’s dying from lung cancer. No one else is allowed to get sick! My mom is already freaked out about me traveling but I figured out how to manage most of my symptoms. So there’s all that I’m dealing with.
Aww I’m about to pull out my hair!
I’m not really going to pull my hair. I just feel like I could. Don’t worry!
Also on another note I’ve noticed my daughter and I deal with similar autism symptoms. When I’m very sick, exhausted or in sensory overload I can’t talk. And I just realized this weekend that my daughter also can’t talk when she’s sick. I felt so bad for getting frustrated with her in the past because I know how difficult it is to lose your ability to talk. My question for you all: can anyone recommend communication apps for autistic adults? Also are there any communication apps for children who have pre-reading skills? Thank you!
Anyways, I hope everyone is having a better Monday than me. If not hang in there and we will get through this!
- Mayo Clinic (n.d). Fibromyalgia. Retrieved from: https://www.mayoclinic.org/diseases-conditions/fibromyalgia/symptoms-causes/syc-20354780